• Happy Chinese New Year to all!

    Come to our CNY 2012 Open House on 11 February 2012, Saturday at 3.30pm!! It will be fun!

  • Walk-a-Payung 2011, Kuching Sarawak

    View their picture here

    Watch for the Walk-a-Payung event in May 2012 in Tropicana!!

  • Danceworks Productions is back in aid of PSLEM. Titled "The White Bat".

    Contact us for ticket details.

  • Berita SLE - Issue Jul-Dec 2010 is now online and downloadable. Download here. Stay tuned for the first edition of the renamed newsletter "MySLE".
  • The date is 10 May 2011.This year it was held in conjunction with WAP.
  • Watch this space for further announcements!

Happy CNY 2012 | Walk-a-Payung, 2012 | The White Bat | Berita SLE | World Lupus Day | Family Camp



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    Persatuan SLE Malaysia


      Come and join the Walk-a-Payung in Kuching Sarawak on December 17, 2011!!


      Danceworks Productions is back in aid of PSLEM in 2012.
      Click here


      Our latest edition Jul-Dec 2010 is out. The online copy can be viewed here.
      Watch this space for the renamed newsletter "My SLE".


      World Lupus Day falls on 10 MAY!
      This year it was held in conjuction with WAP


      Stay tuned for the next Family Camp

    What is SLE?

    Systemic Lupus Erythematosus (SLE) is a chronic, auto-immune disease of unknown cause where the patient’s body makes large quantities of blood proteins called anti-bodies that react against the person’s own tissues.

    History
    Lupus is the Latin word for wolf. Erythematosus means red rashes. In 1851, Dr. Cazenave discovered red rashes on a patient’s face that looked like wolf bites. He named the rash Discoid Lupus Erythematosus (DLE).
    In 1885, Sir William Osler recognised that many people with lupus had a disease involving not only the skin but many other organs or systems. He named the disease Systemic Lupus Erythematosus (SLE).

    Types of Lupus
    Discoid Lupus Erythematosus (DLE)
    • Only involves the skin
    • Rarely spreads to other organs

    Systematic Lupus Erythematosus (SLE)
    • Can spread to other organs
    • Can be fatal

    Statistics
    About 90% of SLE sufferers are women while about 10% are men and children.
    About 90% of women with SLE are in their childbearing years, within the range of 15 to 50 years old.
    Ratio of SLE sufferers :
    In the West, among Afro-Carribeans 1 in 250-500 people
    USA – 1 in 2,000 people
    China – 1 in 1,000 people

    In Malaysia, it is estimated that more than 10,000 people have been diagnosed with SLE over the past 30 years. However, this number may be only the tip of the iceberg. The Malaysian SLE Association believes that there are many more SLE sufferers in Malaysia who have not been diagnosed.